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Wednesday
, August 1
Nashville
6:00pm •
Opening Reception Welcome Sponsored By IMARA INC Warrior Carnival: Trivia And Game Night!
Sheraton Memphis Downtown
4:00pm •
Registration
TBA
1:00pm •
Display area opens
Thursday
, August 2
Heritage Ballroom
9:00am •
Welcome to the 5th Annual Sickle Cell Patient and Family Symposium and Sickle Cell Foundation of Tennessee
10:00am •
Money Matters for Warriors/Caregivers
10:30am •
Self-Advocacy: How, When, Why
11:00am •
Virtual Reality As Adjunct Pain Managment
11:30am •
Mental Health & The Warrior
12:00pm •
Mental Health Panel
1:00pm •
Let's Talk About Endari
2:30pm •
Navigating the Adult Healthcare System
3:00pm •
Mental Health W.R.A.P.
3:30pm •
Focus on the Lungs Pulmonary Hypertension
4:00pm •
The Opioid Epidemic
7:00pm •
Warriors After Dark - Men
Memphis
10:00am •
Financial Matters for Young Adults
10:30am •
Man to Man
11:30am •
Grief Counseling
FULL
3:30pm •
Man and Sensitivity
7:00pm •
Warriors After Dark - Women
Natchez
10:00am •
Ice Breakers- Welcome to Memphis!
11:00am •
Art Therapy
2:30pm •
Sickle What?
Pre-funtion Space
8:00am •
Registration Display Area Opens
St. Louis
7:00am •
Wake Up Well! - Morning Wellness Activity Mindful Breathing/Chair Yoga
10:00am •
Quiet Room
2:30pm •
Quiet Room
TBA
5:30pm •
Closed Session (sign-up Only) Faith-based Grief Counseling Dinner
Friday
, August 3
Heritage Ballroom
9:00am •
COMPASS: Guiding the Direction of Sickle Cell Disease Research
9:45am •
Ironwood: Spotlight on New Clinical Research
10:00am •
The Sickle Brain: Neurology
10:30am •
ASH Sickle Cell Disease Initiative
11:00am •
Transplant Talk
11:30am •
The BMT Donor Experience Be The Match
12:00pm •
Bone Marrow Transplant Round Table
LIMITED
1:00pm •
SPONSORED LUNCH - St. Jude: Gene Therapy
3:30pm •
The Opioid Epidemic and CDC Guidelines: A case of an Unfortunate Consequences Paved By Good Intentions
4:00pm •
Blood Donation Education & Workshop
5:30pm •
Closed Session (sign-up Only) Focus Group Fair Treatment For Warrior
Memphis
10:00am •
Mental Health Workshop for the Young Adult NAMI
11:30am •
The Importance of Self-Care
2:30pm •
Heart to Heart Teen and Young Adult Round Table
4:30pm •
Mental Health for the Caregiver Round Table
5:30pm •
Closed Session (sign-up Only) Bone Marrow Transplant Focus Group
Natchez
10:00am •
Young Warriors Mental Health (2hr block) Workshop
12:00pm •
Cilly Cell
2:30pm •
Woodshop Class
3:30pm •
Caregiver Burnout
St. Louis
7:00am •
Wake Up Well! - Morning Wellness Activity Reflexology
10:00am •
Quiet Room
2:30pm •
Quiet Room
TBA
8:00am •
Registration Display Area Opens
Saturday
, August 4
Heritage Ballroom
9:00am •
Clinical Research and Trials: What is new for the Horizon for Sickle Cell Disease
10:00am •
College Roundtable
11:00am •
Career Panel
12:00pm •
Priapism and Male Health Concerns
12:30pm •
HRSA Embrace/ PCORI - St3P UP
1:00pm •
Patient Engagement Lunch
1:00pm •
Warrior Lifestyle and Culture Magazine
7:00pm •
Warriors of Wakanda Awards Gala & Prom
Memphis
10:30am •
Parent to Parent Initiative and Roundtable
2:15pm •
Closed Session (sign-up Only) Focus Group Blood Transfusion Curriculum
FULL
Natchez
9:00am •
Moving with Mini!
2:15pm •
Focus Group: The Patient-Powered Transition Initiative
St. Louis
7:00am •
Wake Up Well! - Morning Wellness Activity
10:00am •
Quiet Room
TBA
9:00am •
Registration Display Area Opens
Timezone
Patient and Family Symposium
America/Chicago
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Patient and Family Symposium
Aug 1
-
4, 2018
Wednesday
, August 1
Thursday
, August 2
Friday
, August 3
Saturday
, August 4
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Memphis, TN, USA
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Heritage Ballroom
Memphis
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Natchez
Pre-funtion Space
Sheraton Memphis Downtown
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Recently Active Attendees
Clayton Andrews
Lisa Rose
Rev. Jimmie Williams
Pat Smith
Lakiea Bailey, PhD
CT
Candace Taylor Riley
TM
Tabatha Marmon
Ade Adeyokunnu
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