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Patient and Family Symposium

Tosin Ola

Sickle Cell Warriors
President & Founder
Globally via Internet, Locally in San Diego, CA

SickleCellWarriors.com

Ask me anything. I’m an open book. My work in advocacy. How I came up with the term “Sickle Cell Warrior”. My career as a registered nurse. My toddler twins (first babies of the Symposium!), my sickle cell, my dreams for SCW, my aspirations for the future of sickle cell disease care, how to be your own advocate, how to empower yourself or your warrior, what it means to be a warrior...keep those questions coming...

4:00pm CDT

Registration Sheraton Memphis Downtown

6:00pm CDT

Opening Reception Welcome Sponsored By IMARA INC Warrior Carnival: Trivia And Game Night! Nashville

9:00am CDT

Welcome to the 5th Annual Sickle Cell Patient and Family Symposium and Sickle Cell Foundation of Tennessee Heritage BallroomJoseph Lee III • Michael Jackson • Lakiea Bailey, PhD

10:00am CDT

Quiet Room St. Louis Money Matters for Warriors/Caregivers Heritage BallroomSandra J. Quinn Bailey, LACP, AU, AINS

10:30am CDT

Self-Advocacy: How, When, Why Heritage BallroomTosin Ola

11:00am CDT

Art Therapy NatchezMia Robinson Virtual Reality As Adjunct Pain Managment Heritage BallroomLATIKA PURI

11:30am CDT

Mental Health & The Warrior Heritage BallroomDr. Charles Jonassaint

12:00pm CDT

Mental Health Panel Heritage BallroomMinimarie Andrews • Clayton Andrews • Rosemary Britts • Jewel Darbone • Shamonika Wiggins

1:00pm CDT

Let's Talk About Endari Heritage BallroomMark Diamond • Charles Stark

2:30pm CDT

Quiet Room St. Louis Navigating the Adult Healthcare System Heritage BallroomPatricia Adams-Graves

3:30pm CDT

Man and Sensitivity MemphisClayton Andrews

4:00pm CDT

The Opioid Epidemic Heritage BallroomPatricia Adams-Graves

7:00pm CDT

Warriors After Dark - Women MemphisPastor Maxine Collier

9:00am CDT

COMPASS: Guiding the Direction of Sickle Cell Disease Research Heritage BallroomRaymona Lawrence • Lakiea Bailey, PhD

10:00am CDT

Quiet Room St. Louis Young Warriors Mental Health (2hr block) Workshop NatchezVanessa Rhodes The Sickle Brain: Neurology Heritage BallroomDr. Laura DeCastro

10:30am CDT

ASH Sickle Cell Disease Initiative Heritage BallroomLaTasha Lee, PhD, MPH

11:30am CDT

The Importance of Self-Care MemphisMinimarie Andrews

1:00pm CDT

SPONSORED LUNCH - St. Jude: Gene Therapy Heritage BallroomDr. Akshay Sharma

3:30pm CDT

The Opioid Epidemic and CDC Guidelines: A case of an Unfortunate Consequences Paved By Good Intentions Heritage Ballroom

4:00pm CDT

Blood Donation Education & Workshop Heritage BallroomJames Eckman • Ashley Singleton

5:30pm CDT

Closed Session (sign-up Only) Focus Group Fair Treatment For Warrior Heritage BallroomTosin Ola

9:00am CDT

Clinical Research and Trials: What is new for the Horizon for Sickle Cell Disease Heritage BallroomMark Diamond • Jennifer Helfer • Holly John

10:00am CDT

College Roundtable Heritage BallroomClayton Andrews • Dominique • Daquan Felton • Amanda Fuller • Kallie Hargrove • Tosin Ola

11:00am CDT

Career Panel Heritage BallroomClayton Andrews • Dominique • Tosin Ola • Rev. Jimmie Williams

12:30pm CDT

HRSA Embrace/ PCORI - St3P UP Heritage BallroomIfy Osunkwo

1:00pm CDT

Patient Engagement Lunch Heritage BallroomJewel Darbone • Shabreon Howard • Lakiea Bailey, PhD • Monica Rockwell • Shamonika Wiggins Warrior Lifestyle and Culture Magazine Heritage BallroomShabreon Howard

2:15pm CDT

Closed Session (sign-up Only) Focus Group Blood Transfusion CurriculumFULL MemphisAshley Singleton

7:00pm CDT

Warriors of Wakanda Awards Gala & Prom Heritage Ballroom