Loading…

Sign up or log in to bookmark your favorites and sync them to your phone or calendar.

Wednesday, August 1
 

1:00pm

Display area opens
Wednesday August 1, 2018 1:00pm - 7:00pm
TBA

4:00pm

Registration
Registration will be open from 4:00PM to 6:00PM. Please register and receive your event materials prior to going to your room.

Wednesday August 1, 2018 4:00pm - 6:00pm
Sheraton Memphis Downtown 250 N Main St, Memphis, TN 38103

6:00pm

 
Thursday, August 2
 

7:00am

Wake Up Well! - Morning Wellness Activity Mindful Breathing/Chair Yoga
Speakers
avatar for Jackie O!

Jackie O!

Jackie O! Holistic Health Practitioner
A health, wellness and self-care practice offering restorative yoga, health & wellness coaching, sabbatical & self-care experiences and nature-based therapies that enhance overall quality of life in spirit, mind and body.


Thursday August 2, 2018 7:00am - 8:00am
St. Louis 250 N Main St, Memphis, TN 38103

8:00am

Registration Display Area Opens
Thursday August 2, 2018 8:00am - 9:00am
Pre-funtion Space

9:00am

Welcome to the 5th Annual Sickle Cell Patient and Family Symposium and Sickle Cell Foundation of Tennessee
Speakers
avatar for Dr. Lakiea Bailey

Dr. Lakiea Bailey

Executive Director, Sickle Cell Community Consortium
avatar for Joseph Lee III

Joseph Lee III

CEO, The Sickle Cell Foundation of TN
avatar for Michael Jackson

Michael Jackson

Advocate, CCHW, Sickle Cell Foundation of TN.
Michael A. Jackson served for 6 years as volunteer board member at SCFT. In 2017, Jackson worked asProgram Coordinator and Certified Community Health Worker (CCHW). He is also an Integrative Nutrition Health Coach (INHC) through the Institute of Integrative Nutrition. He has served... Read More →


Thursday August 2, 2018 9:00am - 10:00am
Heritage Ballroom 250 N Main St, Memphis, TN 38103

10:00am

Money Matters for Warriors/Caregivers
Speakers
avatar for Sandra J. Quinn Bailey, LACP, AU, AINS

Sandra J. Quinn Bailey, LACP, AU, AINS

Founder, Women Financial Power
Hello, my name is Sandra. I am so passionate about insurance & financial services that I've spent over 38 years in the industry. Founded in 2013, Women Financial Power is a business aimed at educating and promoting financial literacy and security to successful individuals and business... Read More →



Thursday August 2, 2018 10:00am - 10:30am
Heritage Ballroom 250 N Main St, Memphis, TN 38103

10:00am

10:00am

Ice Breakers- Welcome to Memphis!
Speakers
avatar for Vanessa Rhodes

Vanessa Rhodes

Vanessa is a mother of a warrior, advocator, and an educator.  She is a self proclaimed lover of the educational process as evidenced by the variety of positions she has held over the past 31 years.  She served as a teacher, curriculum writer, principal, Educational Administrator... Read More →


Thursday August 2, 2018 10:00am - 11:00am
Natchez 250 N Main St, Memphis, TN 38103

10:00am

Quiet Room
Thursday August 2, 2018 10:00am - 1:00pm
St. Louis 250 N Main St, Memphis, TN 38103

10:30am

Self-Advocacy: How, When, Why
We should be treated with compassionate care in the health care setting, but often we are not. What can YOU do about it? A lot. This session will guide you towards self or caregiver advocacy in the medical setting. Learn how to file a complaint against a doctor or nurse who mistreats you, fight for your rights,, request an appeal if medication is ever denied, and navigate the healthcare system to work in your favor.

Speakers
avatar for Tosin Ola

Tosin Ola

President & Founder, Sickle Cell Warriors
Ask me anything. I’m an open book. My work in advocacy. How I came up with the term “Sickle Cell Warrior”. My career as a registered nurse. My toddler twins (first babies of the Symposium!), my sickle cell, my dreams for SCW, my aspirations for the future of sickle cell disease... Read More →



Thursday August 2, 2018 10:30am - 11:00am
Heritage Ballroom 250 N Main St, Memphis, TN 38103

10:30am

Man to Man
A non-judgemental discussion by and about males facing issues in the Sickle Cell Community. This Panel Discussion is an open interactive talk, led by Brother Juvian Richards about being a male living with Sickle Cell Disease and the ramifications of being, living with or caring for someone with SCD from the males' point of view. This open and honest discussion will explore how societal roles affect the SC man's health, as well as delving into methods from which such societal cycles can be broken.

Speakers
avatar for Clayton Andrews

Clayton Andrews

LAPC, Treatment Team Facilitator, Behavioral Health Counselor, Sickle Cell Champions Association
Clayton Andrews is a 35-year-old patient with Sickle Cell Disease, residing in Augusta GA. A husband and father of four, Clayton is an LAPC and graduate from Troy University with a Master of Science in Counseling and Psychology. His primary focus is the enablement and development... Read More →


Thursday August 2, 2018 10:30am - 11:30am
Memphis 250 N Main St, Memphis, TN 38103

11:00am

11:00am

Art Therapy
Young Warriors 6-14 will work with artist Mia Robinson as she guides them through a personalized painting. Younger and older warriors will be divided up between two paintings based on skill and developmental level. Come paint with us! Paint shirts are provided, but please dress appropriately. Acrylic paints will be used.

Speakers
avatar for Mia Robinson

Mia Robinson

Mia Robinson is a 35 year old Atlanta native that lives with Sickle Cell SC Disease. Mia holds an associates degree in Business Administration and is the owner of Sickle Cell Awareness 365, an apparel line that promotes awareness of the disease. Mia has always been involved in the... Read More →


Thursday August 2, 2018 11:00am - 1:00pm
Natchez 250 N Main St, Memphis, TN 38103

11:30am

Mental Health & The Warrior
Speakers
avatar for Dr. Charles Jonassaint

Dr. Charles Jonassaint

Assistant Professor, University of Pittsburgh
Dr. Charles Jonassaint is a practicing clinical health psychologist focusing behavioral treatments for pain and mental health in sickle cell disease. He has clinical expertise in chronic disease self-management and cognitive behavioral therapy and has had over 10 years experience... Read More →


Thursday August 2, 2018 11:30am - 12:00pm
Heritage Ballroom 250 N Main St, Memphis, TN 38103
  • NEW FIELD 1 Event Type

11:30am

12:00pm

Mental Health Panel
Speakers
avatar for Minimarie Andrews

Minimarie Andrews

Mother. Wife. Educator. Advocate
"Sharing my journey and encouraging others through faith, family, real-life experiences and purpose!" | | Minimarie Andrews is passionate about serving others and providing encouragement. Her mission is to inspire others through living a life purpose lead with intention personally... Read More →
avatar for Clayton Andrews

Clayton Andrews

LAPC, Treatment Team Facilitator, Behavioral Health Counselor, Sickle Cell Champions Association
Clayton Andrews is a 35-year-old patient with Sickle Cell Disease, residing in Augusta GA. A husband and father of four, Clayton is an LAPC and graduate from Troy University with a Master of Science in Counseling and Psychology. His primary focus is the enablement and development... Read More →
avatar for Rosemary Britts

Rosemary Britts

Executive Director, Sickle Cell Association
Rosemary Britts enjoys helping others and takes every opportunity in life to do just that. She is a happily married mother of five children, ages 8 to 28. Her oldest daughter lives with sickle cell disease (SS) which gives her a natural passion for bringing awareness of the disease... Read More →
avatar for Jewel Darbone

Jewel Darbone

Founder/CFO, Bold Lips for Sickle Cell
Jew-EL Darbone is a 29yr old sickle cell warrior dedicated to sickle cell advocacy and empowerment. She is one of the founders and CFO of 501c3 Nonprofit organization #Boldlipsforsicklecell. #Boldlipsforsicklecell started as a social media awareness challenge for sickle cell disease... Read More →


Thursday August 2, 2018 12:00pm - 1:00pm
Heritage Ballroom 250 N Main St, Memphis, TN 38103

1:00pm

Let's Talk About Endari
Speakers
CW

Charles W. Stark, Pharm. D

Sr. VP of Research and Development, emmaus


Thursday August 2, 2018 1:00pm - 2:00pm
Heritage Ballroom 250 N Main St, Memphis, TN 38103

2:30pm

2:30pm

Quiet Room
Thursday August 2, 2018 2:30pm - 4:30pm
St. Louis 250 N Main St, Memphis, TN 38103

2:30pm

Sickle What?
Sickle What? is a hands on workshop for children ages 6-14. Children will learn the basics of blood, gain a better understanding of sickle cell from a biological perspective, and leave with a "make your own blood" takeway to help them explain their newly acquired concepts with others.

Speakers
avatar for Lisa Rose

Lisa Rose

Instructional Designer, HOPE for SCD


Thursday August 2, 2018 2:30pm - 4:30pm
Natchez 250 N Main St, Memphis, TN 38103

3:00pm

Mental Health W.R.A.P.

The Sickle Cell Mental Health Initiative was created by warriors, caregivers and providers of the Sickle Cell Community Consortium, for the purpose of creating a platform on which sickle cell warriors, caregivers, CBOs and mental health providers and experts can navigate the shared experiences, education and tools for managing and understanding the mental health needs of the sickle cell community. One such tool is the Wellness Recovery Action Plan. Clayton W. Andrews, LAPC provides an explanation of this structured recovery outline designed by the patient to help direct the process of wellness and recovery as it applies to the Sickle Cell Warrior. 


Speakers
avatar for Clayton Andrews

Clayton Andrews

LAPC, Treatment Team Facilitator, Behavioral Health Counselor, Sickle Cell Champions Association
Clayton Andrews is a 35-year-old patient with Sickle Cell Disease, residing in Augusta GA. A husband and father of four, Clayton is an LAPC and graduate from Troy University with a Master of Science in Counseling and Psychology. His primary focus is the enablement and development... Read More →


Thursday August 2, 2018 3:00pm - 3:30pm
Heritage Ballroom 250 N Main St, Memphis, TN 38103

3:30pm

3:30pm

Man and Sensitivity
Led by Marcus and Monique McKinley, this MAN-focused track invites our Sickle Cell Warrior Sisters to participate in this interactive roundtable discussion. This track will examine how societal roles have affected the SC man’s health, exploring issues such as husbands and fathers leaving to soon and not being able to have done enough to provide for the family they left behind. This track is designed to delve into an open and honest discussion and definition of what is “sensitivity” is.

Speakers
avatar for Clayton Andrews

Clayton Andrews

LAPC, Treatment Team Facilitator, Behavioral Health Counselor, Sickle Cell Champions Association
Clayton Andrews is a 35-year-old patient with Sickle Cell Disease, residing in Augusta GA. A husband and father of four, Clayton is an LAPC and graduate from Troy University with a Master of Science in Counseling and Psychology. His primary focus is the enablement and development... Read More →


Thursday August 2, 2018 3:30pm - 4:30pm
Memphis 250 N Main St, Memphis, TN 38103

4:00pm

5:30pm

7:00pm

Warriors After Dark - Men
This Warrior-led track is designed as a supportive engagement among the men living and supporting those with Sickle Cell Disease. An opportunity for the brothers to come together and identify and talk about the various issues and experiences faced by the Warrior Male.

Speakers
avatar for Clayton Andrews

Clayton Andrews

LAPC, Treatment Team Facilitator, Behavioral Health Counselor, Sickle Cell Champions Association
Clayton Andrews is a 35-year-old patient with Sickle Cell Disease, residing in Augusta GA. A husband and father of four, Clayton is an LAPC and graduate from Troy University with a Master of Science in Counseling and Psychology. His primary focus is the enablement and development... Read More →


Thursday August 2, 2018 7:00pm - 8:00pm
Heritage Ballroom 250 N Main St, Memphis, TN 38103

7:00pm

 
Friday, August 3
 

7:00am

Wake Up Well! - Morning Wellness Activity Reflexology
Speakers
avatar for Mia Earl, Ph.D.

Mia Earl, Ph.D.

Natural Health Practitioner, Abundant Life Wellness Solutions
Entrepreneur, Author, The Be Well Specialist, Certified Reflexologist, Certified Health Education Specialist


Friday August 3, 2018 7:00am - 8:00am
St. Louis 250 N Main St, Memphis, TN 38103

8:00am

Registration Display Area Opens
Friday August 3, 2018 8:00am - 9:00am
TBA

9:00am

COMPASS: Guiding the Direction of Sickle Cell Disease Research
Speakers
avatar for Dr. Lakiea Bailey

Dr. Lakiea Bailey

Executive Director, Sickle Cell Community Consortium


Friday August 3, 2018 9:00am - 10:00am
Heritage Ballroom 250 N Main St, Memphis, TN 38103

9:45am

Ironwood: Spotlight on New Clinical Research
Meet Ironwood, a company based in Cambridge, MA, researching a potential treatment for sickle cell disease. Find out more about the core values that motivate us, our sickle cell clinical trial, Ironwood’s plan to spin out a new company focused on rare and other serious diseases next year, and ways we are collaborating with the sickle cell community.
 

Speakers
HJ

Holly John

Ironwood


Friday August 3, 2018 9:45am - 10:00am
Heritage Ballroom 250 N Main St, Memphis, TN 38103

10:00am

10:00am

Mental Health Workshop for the Young Adult NAMI
Ms. Sharon M. Gartrell is a retired United States Army veteran with over 21 years of honorable service. A member of NAMI Memphis for nearly 20 years, she has filled numerous positions and accomplished multiple responsibilities, including serving on the Board of Directors. She has also been very involved in the Memphis Crisis Intervention Team (CIT) program, which began in Memphis 30 years ago and is now a national model as well as international for law enforcement training in dealing with mental health crisis. 

Since Sharon’s retirement, she has performed volunteer positions such as:
  • Columnist
  • Creative writer
  • Amateur artist 
  • Lecturer
  • Published writer
  • Interviewee/panelist/mental health consumer 
She has also volunteered in other various non-profit organizations in the Mid-South and beyond.

Speakers

Friday August 3, 2018 10:00am - 11:00am
Memphis 250 N Main St, Memphis, TN 38103

10:00am

Young Warriors Mental Health (2hr block) Workshop
Young warriors 6-14 will work to create an empowering shield to embrace heir inner strength. 

Speakers
avatar for Vanessa Rhodes

Vanessa Rhodes

Vanessa is a mother of a warrior, advocator, and an educator.  She is a self proclaimed lover of the educational process as evidenced by the variety of positions she has held over the past 31 years.  She served as a teacher, curriculum writer, principal, Educational Administrator... Read More →


Friday August 3, 2018 10:00am - 12:00pm
Natchez 250 N Main St, Memphis, TN 38103

10:00am

Quiet Room
Friday August 3, 2018 10:00am - 1:00pm
St. Louis 250 N Main St, Memphis, TN 38103

10:30am

11:00am

Transplant Talk
Speakers
avatar for Dr. Akshay Sharma

Dr. Akshay Sharma

Attending Physician, St. Jude Children's Research Hospital
I am a pediatric bone marrow transplant physician who specializes in gene therapy and bone marrow transplantation to cure blood diseases such as sickle cell disease.


Friday August 3, 2018 11:00am - 11:30am
Heritage Ballroom 250 N Main St, Memphis, TN 38103

11:30am

11:30am

The Importance of Self-Care
Speakers
avatar for Minimarie Andrews

Minimarie Andrews

Mother. Wife. Educator. Advocate
"Sharing my journey and encouraging others through faith, family, real-life experiences and purpose!" | | Minimarie Andrews is passionate about serving others and providing encouragement. Her mission is to inspire others through living a life purpose lead with intention personally... Read More →


Friday August 3, 2018 11:30am - 12:30pm
Memphis 250 N Main St, Memphis, TN 38103

12:00pm

Cilly Cell
Cilly Cell, a national character representing and empowering young warriors across the country, will be joining us for a reading of "A Painful Crisis- Jeffrey's Story" and guiding us in a music and movement activity focused on empowerment. 

Friday August 3, 2018 12:00pm - 1:00pm
Natchez 250 N Main St, Memphis, TN 38103

12:00pm

1:00pm

SPONSORED LUNCH - St. Jude: Gene Therapy
Speakers
avatar for Dr. Akshay Sharma

Dr. Akshay Sharma

Attending Physician, St. Jude Children's Research Hospital
I am a pediatric bone marrow transplant physician who specializes in gene therapy and bone marrow transplantation to cure blood diseases such as sickle cell disease.


Friday August 3, 2018 1:00pm - 2:30pm
Heritage Ballroom 250 N Main St, Memphis, TN 38103

2:30pm

Woodshop Class
Join us for this hands on class as we make our own chalkboards. Participants will learn about wood types, grains, sanding, painting, and basic assembly. Participants should be dressed in clothes that can possibly be stained as we are working with paint and hot glue.

Speakers
avatar for Lisa Rose

Lisa Rose

Instructional Designer, HOPE for SCD


Friday August 3, 2018 2:30pm - 3:30pm
Natchez 250 N Main St, Memphis, TN 38103

2:30pm

2:30pm

Quiet Room
Friday August 3, 2018 2:30pm - 5:30pm
St. Louis 250 N Main St, Memphis, TN 38103

3:30pm

3:30pm

Caregiver Burnout
Caregivers are warriors too! Come join us as we discuss caregiver burnout and how to take care of you while also caring for your warrior. All caregivers are invited- parents, siblings, spouses, friends, etc.

Speakers
avatar for Jeannie Byrd, RN, MSN

Jeannie Byrd, RN, MSN

Nurse Case Manager, Vanderbilt Center of Excellence in Sickle Cell Disease
Jeannie Byrd is the Pediatric Sickle Cell Case Manager for Monroe Carell Jr. Children’s Hospital at Vanderbilt.  She has been in this position since 2012, after nearly 30 years as an adult cardiology nurse.  In her current role, she is the first point of contact for many parents... Read More →


Friday August 3, 2018 3:30pm - 4:30pm
Natchez 250 N Main St, Memphis, TN 38103

4:00pm

Blood Donation Education & Workshop
During this session we will: 
  • Provide information for sickle cell CBOs to share with warriors about transfusion, complications, and safety measures​
  • Launch Be the Motivation campaign for blood donation ambassadors​
  • Hear from you about patient and family education activities and products related to blood transfusion and blood transfusion history tracking.  

Speakers
avatar for Ashley Singleton

Ashley Singleton

Research Associate, Georgia Health Policy Center
Hello! I am an advocate for minority blood donations. This is so important for safe blood transfusions. Ask me more! I'd be happy to talk to you!



Friday August 3, 2018 4:00pm - 6:00pm
Heritage Ballroom 250 N Main St, Memphis, TN 38103

4:30pm

Mental Health for the Caregiver Round Table
Speakers
avatar for Minimarie Andrews

Minimarie Andrews

Mother. Wife. Educator. Advocate
"Sharing my journey and encouraging others through faith, family, real-life experiences and purpose!" | | Minimarie Andrews is passionate about serving others and providing encouragement. Her mission is to inspire others through living a life purpose lead with intention personally... Read More →
avatar for Clayton Andrews

Clayton Andrews

LAPC, Treatment Team Facilitator, Behavioral Health Counselor, Sickle Cell Champions Association
Clayton Andrews is a 35-year-old patient with Sickle Cell Disease, residing in Augusta GA. A husband and father of four, Clayton is an LAPC and graduate from Troy University with a Master of Science in Counseling and Psychology. His primary focus is the enablement and development... Read More →


Friday August 3, 2018 4:30pm - 6:00pm
Memphis 250 N Main St, Memphis, TN 38103

5:30pm

5:30pm

Closed Session (sign-up Only) Focus Group Fair Treatment For Warrior
We are working on an initiative to ensure a Fair Treatment of Warriors in hospitals and emergency rooms across the country. Hear about our progress this year. We need your input on how to make this program successful. Join us to share your ideas and advice as to the Fair treatment of Warrior’s initiative.

Speakers
avatar for Tosin Ola

Tosin Ola

President & Founder, Sickle Cell Warriors
Ask me anything. I’m an open book. My work in advocacy. How I came up with the term “Sickle Cell Warrior”. My career as a registered nurse. My toddler twins (first babies of the Symposium!), my sickle cell, my dreams for SCW, my aspirations for the future of sickle cell disease... Read More →


Friday August 3, 2018 5:30pm - 6:30pm
Heritage Ballroom 250 N Main St, Memphis, TN 38103
 
Saturday, August 4
 

7:00am

Wake Up Well! - Morning Wellness Activity
Speakers
avatar for Mia Earl, Ph.D.

Mia Earl, Ph.D.

Natural Health Practitioner, Abundant Life Wellness Solutions
Entrepreneur, Author, The Be Well Specialist, Certified Reflexologist, Certified Health Education Specialist


Saturday August 4, 2018 7:00am - 8:00am
St. Louis 250 N Main St, Memphis, TN 38103

9:00am

9:00am

Registration Display Area Opens
Saturday August 4, 2018 9:00am - 10:00am
TBA

9:00am

Moving with Mini!
"Moving with Mini"  is a subsidiary under Purpose Filled Mommy that promotes health, wellness, encouragement, and performance arts for youth. Youth of all ages, backgrounds, and disabilities have experienced powerful, impactful, energetic, sessions that combines mentorship, movement, and motivation. Founder Minimarie Andrew has 19 years of experience and passion in working with youth in fine arts, fitness,  mentorship in various capacities. PLEASE DRESS IN COMFORTABLE CLOTHING.

Speakers
avatar for Minimarie Andrews

Minimarie Andrews

Mother. Wife. Educator. Advocate
"Sharing my journey and encouraging others through faith, family, real-life experiences and purpose!" | | Minimarie Andrews is passionate about serving others and providing encouragement. Her mission is to inspire others through living a life purpose lead with intention personally... Read More →


Saturday August 4, 2018 9:00am - 1:00pm
Natchez 250 N Main St, Memphis, TN 38103

10:00am

College Roundtable
Have you ever wanted to go to college, but not sure if you can with sickle cell? Learn from those who have successfully attended college about how to navigate college life with sickle cell disease. Education is the cornerstone to one’s career, so don’t let sickle cell stop you from reaching your graduation goals.

Speakers
avatar for Clayton Andrews

Clayton Andrews

LAPC, Treatment Team Facilitator, Behavioral Health Counselor, Sickle Cell Champions Association
Clayton Andrews is a 35-year-old patient with Sickle Cell Disease, residing in Augusta GA. A husband and father of four, Clayton is an LAPC and graduate from Troy University with a Master of Science in Counseling and Psychology. His primary focus is the enablement and development... Read More →
avatar for Tosin Ola

Tosin Ola

President & Founder, Sickle Cell Warriors
Ask me anything. I’m an open book. My work in advocacy. How I came up with the term “Sickle Cell Warrior”. My career as a registered nurse. My toddler twins (first babies of the Symposium!), my sickle cell, my dreams for SCW, my aspirations for the future of sickle cell disease... Read More →


Saturday August 4, 2018 10:00am - 11:00am
Heritage Ballroom 250 N Main St, Memphis, TN 38103

10:00am

Quiet Room
Saturday August 4, 2018 10:00am - 1:00pm
St. Louis 250 N Main St, Memphis, TN 38103

10:30am

Parent to Parent Initiative and Roundtable
The Sickle Cell Community Consortium has begun a national parent to parent initiative with the goal to connect parents from diagnosis through adult living. Join us to learn more about how this initiative is designed, what we have accomplished thus far, and how you as a parent can join us and provide your valuable input!

Speakers
avatar for Rosemary Britts

Rosemary Britts

Executive Director, Sickle Cell Association
Rosemary Britts enjoys helping others and takes every opportunity in life to do just that. She is a happily married mother of five children, ages 8 to 28. Her oldest daughter lives with sickle cell disease (SS) which gives her a natural passion for bringing awareness of the disease... Read More →
avatar for Lisa Rose

Lisa Rose

Instructional Designer, HOPE for SCD



Saturday August 4, 2018 10:30am - 12:00pm
Memphis 250 N Main St, Memphis, TN 38103

11:00am

Career Panel
Every warrior should have a career; one that channels your passions, hobbies, interest, and purpose. Learn from other warriors who have been able to have vibrant and successful careers, even though they like you, are coping with sickle cell disease. It is possible!

Speakers
avatar for Clayton Andrews

Clayton Andrews

LAPC, Treatment Team Facilitator, Behavioral Health Counselor, Sickle Cell Champions Association
Clayton Andrews is a 35-year-old patient with Sickle Cell Disease, residing in Augusta GA. A husband and father of four, Clayton is an LAPC and graduate from Troy University with a Master of Science in Counseling and Psychology. His primary focus is the enablement and development... Read More →
avatar for Tosin Ola

Tosin Ola

President & Founder, Sickle Cell Warriors
Ask me anything. I’m an open book. My work in advocacy. How I came up with the term “Sickle Cell Warrior”. My career as a registered nurse. My toddler twins (first babies of the Symposium!), my sickle cell, my dreams for SCW, my aspirations for the future of sickle cell disease... Read More →


Saturday August 4, 2018 11:00am - 12:00pm
Heritage Ballroom 250 N Main St, Memphis, TN 38103

12:00pm

12:30pm

1:00pm

Patient Engagement Lunch
Speakers
avatar for Dr. Lakiea Bailey

Dr. Lakiea Bailey

Executive Director, Sickle Cell Community Consortium
avatar for Jewel Darbone

Jewel Darbone

Founder/CFO, Bold Lips for Sickle Cell
Jew-EL Darbone is a 29yr old sickle cell warrior dedicated to sickle cell advocacy and empowerment. She is one of the founders and CFO of 501c3 Nonprofit organization #Boldlipsforsicklecell. #Boldlipsforsicklecell started as a social media awareness challenge for sickle cell disease... Read More →
avatar for Monica Rockwell

Monica Rockwell

Patient Advocate, SWGA Sickle Cell Awareness
For sickle cell patients along with families and friends connecting resources available to them to assist in their health journey.


Saturday August 4, 2018 1:00pm - 2:00pm
Heritage Ballroom 250 N Main St, Memphis, TN 38103

1:00pm

2:15pm

Closed Session (sign-up Only) Focus Group Blood Transfusion Curriculum
Limited Capacity full

This fall we are hosting a Warrior University series focused on blood transfusion and minority blood donation. We take the warrior slogan “Nothing about us, without us” very seriously and want to hear from you!  What are your concerns about blood transfusions?   What should warriors know about blood donations?

Please join Drs. Jim Eckman and Raymona Lawrence for a conversation this Saturday at 2:15 PM in MEMPHIS. We look forward to speaking with you!  

Speakers
avatar for Ashley Singleton

Ashley Singleton

Research Associate, Georgia Health Policy Center
Hello! I am an advocate for minority blood donations. This is so important for safe blood transfusions. Ask me more! I'd be happy to talk to you!


Saturday August 4, 2018 2:15pm - 3:15pm
Memphis 250 N Main St, Memphis, TN 38103

2:15pm

7:00pm