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Saturday, August 4 • 1:00pm - 2:00pm
Patient Engagement Lunch

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avatar for Jewel Darbone

Jewel Darbone

Founder/CFO, Bold Lips for Sickle Cell
Jew-EL Darbone is a 29yr old sickle cell warrior dedicated to sickle cell advocacy and empowerment. She is one of the founders and CFO of 501c3 Nonprofit organization #Boldlipsforsicklecell. #Boldlipsforsicklecell started as a social media awareness challenge for sickle cell disease... Read More →
avatar for Lakiea Bailey, PhD

Lakiea Bailey, PhD

Executive Director, Sickle Cell Community Consortium
The Sickle Cell Community Consortium is a US-based non-profit formed in 2014 to “harness and amplify the power of the patient voice”. The Consortium is comprised of sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners and medical... Read More →
avatar for Monica Rockwell

Monica Rockwell

Patient Advocate, SWGA Sickle Cell Awareness
For sickle cell patients along with families and friends connecting resources available to them to assist in their health journey.

Saturday August 4, 2018 1:00pm - 2:00pm CDT
Heritage Ballroom